*“Don’t worry, God will take care of me.”
This is what 5-year-old Julianna Snow told her mother, as they faced going through yet another trip to the hospital. The child, who suffers from an incurable condition, has been in and out of hospitals for the past 18 months.
Those words must have stretched her parents heartstrings to near breaking point.
Little Julianna, who resides in Oregon, has been given only a short time to live, yet she has experienced more in her five years of life, than many of us decades older than her.
Countless procedures to minimize the trauma from her incurable, degenerative neuromuscular disease, Charcot-Marie-Tooth (CMT), has her spending “weeks at a time trying to breathe,” according to her mom, who has dedicated an online diary for family and friends to keep up with.
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